After five long weeks of chemo and radiation, Joey got to ring the bell today…
They have a ceremony at CTCA where when someone finishes their last treatment… they get to ring the bell, and they make a celebration of that part of your journey being completed.
It’s a day my bride has been looking forward to since we got here in mid-August. Though we will continue to come back here for more, even stronger, chemo treatments that Joey will get in the coming months… all of her radiation treatments are completed and that’s what Joey got to celebrate today.
The smile, the tears, and especially the joy on her face said it all.
What an incredible staff of people they have at this hospital. After almost two months of living in a hotel, then a house nearby, and coming in daily for treatments and appointments, we feel part of a much bigger family that have welcomed us with open arms and loved us just as we are.
Our truck was already packed for the trip home… so as soon as the ceremony was over, we hit the road, and just got home to our farm here in Tennessee an hour or so ago. Joey and the baby are sleeping and I’m sitting here in my easy chair… hitting play again and again… watching my sweet wife surrounded by angels with pom-poms and hugs cheering her on.
Three hundred miles and many hours later… the bell is still ringing and I’m still celebrating.
Thank you Lord for this milestone. Thank you. Thank you.
Beneath the bell at CTCA there’s a plaque on the wall with a beautiful story from an unknown author that I’d never heard before…
There were two horses in a field. From a distance, each horse looks like any other horse. But if you get a closer look you will notice something quite interesting… One of the horses is blind. His owner has chosen not to have him put down, but has made him a safe and comfortable barn to live in. This alone is pretty amazing. But if you stand nearby and listen, you will hear the sound of a bell. It is coming from a smaller horse in the field. Attached to the horse’s halter is a small, copper-colored bell. It lets the blind friend know where the other horse is, so he can follow. As you stand and watch these two friends you’ll see that the horse with the bell is always checking on the blind horse, and that the blind horse will listen for the bell and then slowly walk to where the other horse is, trusting he will not be led astray. When the horse with the bell returns to the shelter of the barn each evening, he will stop occasionally to look back, making sure that the blind friend isn’t too far behind to hear the bell.
Like the owners of these two horses, God does not throw us away just because we are not perfect. Or because we have problems or challenges. He watches over us and even brings others into our lives to help us when we are in need. Sometimes we are the blind horse, being guided by the little ringing bell of those who God places in our lives.
And at other times we are the guide horse, helping others to find their way. Good friends are like that. You may not always see them, but you know they are always there.
Please listen for my bell, and I will listen for yours”.
On Monday while we were home from the hospital, we picked a shady spot in the front yard and celebrated my beautiful wife Joey’s first 40 years of life.
We celebrated it with family…
When Joey was in her early teens growing up back in Indiana, she had a horse named Velvet that she loved so much.
I’ve heard lots of stories about how she got Velvet and about the wonderful times they had together… the trails they rode… the Halloween she was the headless horseman and rode from house to house trick-or-treating… and how hard it was for her when she was sixteen and Velvet passed away.
Joey’s talked about getting another horse for years and has dreamed of owning one again, but she is so incredibly responsible that it just never made any sense for her or us to have one… our life was too busy, and we didn’t have room, and hay is expensive, and lots of other really good reasons.
I’m not sure it makes any more sense today… but I think sometimes that life doesn’t have to make sense. And it might not seem like the best timing, but it is.
Because the best time to love someone and make their dreams come true is today.
So, after 24 years of waiting and hoping, Joey got a horse for her birthday. She’s a seven year old, blue-roan quarter horse from Texas and she’s gorgeous, just like my bride.
We were given two horses, so that her horse would have a companion in the pasture, and so Joey would have someone to ride with when she gets better and feels strong enough to go riding.
So it looks like some guy in bib overalls may have to learn to be a cowboy for his cowgirl.
It was a wonderful day. A small celebration filled with big love.
By Monday evening, it was back to Georgia for more chemo and more radiation and more hope of many years of riding horses together and watching them graze in the back field as the sun sets.
PS: our little Indy was pretty excited about the horses too. But I think she was most excited about the horse balloons for the party…
My wife Joey still has a song to sing.
In fact, she has lots of songs that she wants to sing in the future. It’s part of what gives her the strength to push on through all the nausea and pain that she’s been experiencing as she goes through cancer treatment.
That, and a sweet little one that makes even her toughest day, oh so much easier…
Less than a week before we came here to Atlanta, Joey and I went into a studio in Nashville and recorded twelve tracks for a brand new album. It’s a record that Joey has always wanted to do… an album of nothing but old traditional hymns. Since this is a project that has been a dream of hers to do since she was very young, I let her choose all the songs. Most of the ones she chose I knew fairly well, and some I’m still getting familiar with. Songs like… “It Is Well With My Soul”, “Old Rugged Cross”, “I Surrender All”, “How Great Thou Art”, “He Touched Me” and a many others.
I didn’t grow up with hymns or gospel music in my life. I was sorta raised Catholic (mostly because my Mom had been raised Catholic I think) and the few times that we went to church, they didn’t play those kinds of songs there. Much later in life, when I was in the service, I started going to non-denominational churches and slowly became acquainted with these old songs. Now I can’t get enough of them.
Joey was raised singing hymns in the little church in Indiana that her and her family went to growing up. She has always loved them.. and because of her, and because of what God has done in my life, I have learned to love them deeply too. As a songwriter, I’ve also fallen in love with how simple, yet brilliant, the lyrics and melodies to these songs are. They say so much, with so little.
We will travel back home this coming weekend to play sold-out concerts at our farm on Friday and Saturday nights, and then on Sunday evening, we’re going to do a special tv taping at our concert hall for the new hymns album. It’s a lot for us to do, especially since Joey’s in the middle of chemo and radiation right now, and she doesn’t feel well… but this record is important to her, and she wants to do the taping before the next round of chemo takes her hair and most of her energy away.
We’ve been staying in a hotel a block or so from Cancer Treatment Center, and when Joey finishes her chemo and radiation treatments each day at the hospital, she’s been coming back to the room and recording her vocals for this new album. Since we aren’t home and won’t be home much in the next month or so, we set up a small microphone here in the hotel room and in between treatments and taking care of little Indy, Joey’s been singing the songs that mean the most to her. Songs like this one…
And while she sings, Indiana plays at her feet – or sits in a chair nearby, as the chemo courses through her veins – innocently unaware of what her mama is going through. Filled with nothing but love and life, and a light so bright… you can’t help but smile when you’re near her.
Yes, my bride has a beautiful song in her heart… and I believe, the world needs to hear it.
On Sunday we made the drive down to the Cancer Treatment Center of America in Newnan, GA – just outside of Atlanta. We have been looking so forward to this trip, not because it’s going to be easy… but because it’s the next important step in Joey’s treatment to get her body rid of all the cancer that might still be lingering in her body after the surgery.
We’re going to be here in Georgia for awhile, so we loaded what seemed like half the house into our Suburban and headed south.
On our trip down, we made a couple of pit-stops for gas and lunch, and of course… bathroom breaks. But not your normal, every day bathroom breaks. These are Indiana potty-training breaks…
Believe it or not, Joey has had Indiana ‘going’ in her little wooden potty chair since she was about 11 months old (a fan of our tv show made the chair for her and brought to one of our concerts last year). Joey always sits her down on her chair and starts reading to her…and next thing you know, well… mission accomplished. So when you’re on a long drive, and Indy starts showing signs of needing to go on the road… Joey has me pull over and get the potty chair out, so they can do their little routine. It’s the funniest, strangest, sweetest thing. Especially when this time, it’s in the middle of nowhere and starting to rain, so I had to get out the umbrella for them.
Before long we were back on the road and Indy and Joey were happy as can be. We got to Atlanta and checked into the hotel where we’ll be staying for the next four or five weeks. They have a swimming pool, so Indy and I will be spending some time there while Mama does her treatments. Indy loves to play in the water, and I love to play with her in the water, so it works out perfect.
The hospital facility here is beautiful. And like everyone at CTCA in Chicago, the people who work here are amazing. They have welcomed us with open arms, and though we’ve only been here a couple of days…we already feel at home.
Indiana and I’ve had breakfast with Joey each morning at the hospital, then we walk her to her first appointment. Afterwards Indy and I head out on our own adventures. Yesterday I think we walked a hundred miles around the hotel and nearby places here in this sweet little town.
Today my bride has a long day of meetings and tests to get ready for chemo and radiation, so Indy and I will explore some more and be ready when she calls and says it’s time for us to come get her.
And she’ll be there in lobby watching for us. We’re kinda easy to spot. I’ll be the guy in bib overalls with the cute baby on my shoulders.
It’s been over three weeks since my last blog post and update on my bride. Not because anything is wrong – honestly, it’s just because we’ve just been enjoying being together at home, and every day of every week since Joey got out of the hospital has had some ups and downs. But as of about a week ago, things have started leveling out and it’s now easier to see where we are, and where we’re headed from here.
A few days ago, on Monday, Joey had a post-op checkup with her surgeon and some other care-team members in Chicago. It was a quick overnight trip back up to the hospital, so Heidi went with her while I stayed here at home with Indiana. Heidi did all the bag carrying and note taking for her Mom and though it was a long flight and trip for Joey, they both had a wonderful time together.
After a day of blood work and many meetings, the doctors there said that they feel like Joey is doing wonderful. And she really is.
But it was a very rough start for her…
For almost two weeks after her surgery, Joey could barely eat anything. Between the medicine she was on and the nausea it caused, she had very little strength and her weight was dropping daily. After finally bottoming out at a frail 108 pounds, her appetite and her energy level finally started coming back. And though she still has a long road ahead of her, she’s gained a few pounds back, feeling so much better, and it shows.
On the 16th of this month, we will travel to the Cancer Treatment Center of America in Atlanta for 4 to 6 weeks of chemo and radiation. The folks in Chicago graciously arranged it for us to do this portion of her care closer to home. We will move and stay there (it’s actually in Newnan, GA) together as a family pretty much the whole time, other than a weekend or two in September that we plan to come back home for. Joey will be receiving radiation every day, and chemo once a week.
One of the things that has helped I think is being back at our farmhouse. The hospital and their staff at CTCA have been incredible, but there’s nothing more healing than being at home in your own bed, surrounded by the things and the people you love. Although it has been hot and muggy during the days here, we’ve spent lots of evenings on our back deck watching the sun go down over Joey’s garden, talking about the future and thanking God for all the ways that we are blessed.
Here are a couple recent blessings…
– Friends, neighbors and family have kept up the garden for Joey while we we’ve been away. They came in the evenings by the ones, twos, threes and even by the dozens – to till, weed, water, pick and some have even canned and froze vegetables from her garden.
– Countless homemade meals have been brought to us from friends and neighbors. Joey might have been losing weight for awhile… but I was gaining it!
– Letters, boxes, flowers and more continue to arrive in the mail. Last week our friend Julie and some other folks spent days and days helping Joey and us go through all that has come in. Some of the cards and letters made us smile, and some moved us to tears. But they all touched us deeply, just knowing that so many people took time from their busy lives to write and encourage Joey on this journey.
Joey hasn’t felt up for many visitors since she’s been home, but both her Mama and her Daddy have been down here to spend time with us. Her dad was able to stay for a weekend and her mom is here staying with us for a couple of weeks – helping with Indy and things around the house as Joey gets stronger and we get ready to start the next phase of treatment.
Our little Indy is doing wonderful as well. She’s just as happy and sweet as ever and though Joey still can’t pick her for a couple more weeks… she can hold her in her lap and they read books and Indy gives her mama lots of kisses. It’s so so sweet to watch.
We have sold-out concerts scheduled this weekend at our concert hall here at home and Joey is excited to walk across our driveway and see everyone and do some singing. She’s not sure yet how much energy she’ll have or how many songs she’ll be able to do… but even if it’s just a couple of songs, it’s going to be special to see her sweet smile and hear her beautiful voice again after all she’s been through.
…and standing right next to her, I’ll have the best seat in the house to watch it all.
PS …here’s a couple more pics of Indy from after dinner this evening. She was playing/laying on the floor before bed time, hamming it up for her papa.
Did I mention our many blessings?